𝗛𝗼𝘄 𝗱𝗼 𝗿𝗮𝗿𝗲 𝘀𝘆𝗻𝗱𝗿𝗼𝗺𝗲𝘀 𝗮𝗻𝗱 𝘄𝗼𝘂𝗻𝗱 𝗵𝗲𝗮𝗹𝗶𝗻𝗴 𝗶𝘀𝘀𝘂𝗲𝘀 𝗹𝗶𝗸𝗲 𝗘𝗗𝗦 𝘄𝗵𝗶𝗰𝗵 𝗶𝘀 𝗘𝗵𝗹𝗲𝗿𝘀-𝗗𝗮𝗻𝗹𝗼𝘀 𝗦𝘆𝗻𝗱𝗿𝗼𝗺𝗲 𝗶𝗺𝗽𝗮𝗰𝘁 𝗔𝗦𝗖 𝗽𝗹𝗮𝗻𝗻𝗶𝗻𝗴 𝗮𝗻𝗱 𝗿𝗲𝗰𝗼𝘃𝗲𝗿𝘆? So, the key here with the syndromes, which is a totally different situation than your adolescent scoliosis that is most commonly treated, is that it has to be done on a very unique and individualistic basis. Ehlers-Danlos, for instance, is very different than Prader-Willi, etc
𝗛𝗼𝘄 𝗱𝗼 𝗿𝗮𝗿𝗲 𝘀𝘆𝗻𝗱𝗿𝗼𝗺𝗲𝘀 𝗮𝗻𝗱 𝘄𝗼𝘂𝗻𝗱 𝗵𝗲𝗮𝗹𝗶𝗻𝗴 𝗶𝘀𝘀𝘂𝗲𝘀 𝗹𝗶𝗸𝗲 𝗘𝗗𝗦 𝘄𝗵𝗶𝗰𝗵 𝗶𝘀 𝗘𝗵𝗹𝗲𝗿𝘀-𝗗𝗮𝗻𝗹𝗼𝘀 𝗦𝘆𝗻𝗱𝗿𝗼𝗺𝗲 𝗶𝗺𝗽𝗮𝗰𝘁 𝗔𝗦𝗖 𝗽𝗹𝗮𝗻𝗻𝗶𝗻𝗴 𝗮𝗻𝗱 𝗿𝗲𝗰𝗼𝘃𝗲𝗿𝘆? So, the key here with the syndromes, which is a totally …
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Ehlers-Danlos Syndromes | Docteur Souare
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What we wish you knew about Ehlers Danlos Syndromes & Hypermobility Spectrum Disorder this EDS & HSD Awareness Month! 1.EDS & HSD are a spectrum & can affect people with the same type very differently, with a wild variety of symptoms. Some people can live & work relatively normally, others need lots of surgeries & others can be very disabled & need various mobility aids, from wheelchairs to feeding tubes. 2. They have so many complications or comorbidities that can occur all over the body. I, fo
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At EDS ECHO we are supporting doctors, nurses, therapists, midwives, pharmacists, health and social administrators, and community leaders and educators, worldwide, to be better informed and confident in the diagnosis and management of the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), and to provide care locally. | The Ehlers-Danlos Society
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healthjade.net
To mark Ehlers-Danlos syndrome and HSD Awareness Month, Baroness Nicola Blackwood calls on people to take part in health research to speed up diagnosis and develop cutting-edge treatments. Please join the Global Registry and do your part for research! This is a vital tool that will help researchers uncover the unknown in the Ehlers-Danlos syndromes and hypermobility spectrum disorders. Visit ehlers-danlos.com/eds-global-registry/ | The Ehlers-Danlos Society
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